After an age of faffing while my private rheumatologist referred me back to the NHS I finally embark on a course of treatment.
A few learnings:
- the normal NHS route is for the hospital to start patients on methotrexate. My flip into private and back was causing some confusion
- methotrexate is so toxic that you want to approach it gingerly edging up the dose while monitoring blood markers for any adverse reaction, the dose is stablized over a period of a three months
- information is lost at interfaces, for example what dose, which drugs? Details, details. As a scientist I'd welcome a bit pf precision here, otherwise it might blow the placebo effect!
Methotrexate is so toxic it's motivated me to reduce my alcohol intake down to 2 units a week - effectively I've swapped one toxin for another.
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